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Clinical Data Reality

Missingness Is a Signal

9 min+90 XPStep 1/11

Missing data is clinical data

In medicine, why a value is absent carries diagnosis: no troponin ordered because chest pain was ruled out at the door; no psych notes because the patient was never referred — or was referred and refused.

The missingness taxonomy: MCAR (random gaps — rare), MAR (missing predictable from observed data), and MNAR — missing not at random, where absence depends on the unobserved value itself. EHR data is heavily MNAR in both directions: sicker patients get more tests, and the worried-well get extra workups — missingness encodes triage judgment.